isla

The Isla Cecil Brighter Future Fund has been set up by Mikey and Anna Cecil in memory of their first daughter Isla, who tragically died aged 15 months in November 2012, to a currently untreatable and incurable chilldhood brain tumour called ETANTR.

A seemingly healthy little girl when on holiday in Cornwall in September that year, Isla was diagnosed by Great Ormond Street Children's Hospital with this aggressive tumour on 7th October and died exactly a month later. During Isla's illness there was no treatment available. We feel it is unacceptable in this day and age that there is no hope and have since been working with Darren Hargrave, Isla's Oncologist, and Great Ormond Street Hospital Children's Charity to raise much needed funds into research projects directly related to childhood brain tumours which include ETANTR.

To date over £600,000 has been raised for the Isla Cecil Brighter Future Fund. We cannot thank enough all those who have supported the Fund, through donations as well as partaking in a huge array of fund raising activites, to reach this staggering amount.

Isla's Fund is thrilled to already have contributed £500,000 to INSTINCT - a five year, ground breaking, platinum research programme into rare childhood brain tumours (including ETANTR). With a £4m funding commitment it was launched in November 2014 and is being led by Darren.

We will not rest until there is meaningful progress in this field, to ensure that other children do not have their lives taken away so cruelly at such a young age and parents do not have to go through the agony. We are currently speaking to GOSHCC to understand best how we can allocate funds moving forward.

To date there have been a couple of major fundraising events. In July 2013 Mikey and a 80 strong peloton cycled their way round the country on Isla's Tour, covering over 1,100 miles in two weeks, visiting all the places Isla had visited in her short life. The ride finished at Windsor Racecourse, where a race was named in Isla's memory and Mikey and Anna hosted a 300 person dinner and auction. Many family and friends have also undertaken their own fundraising challenges which have included teddy bear picnics, fetes, walking the Three Peaks, marathons, ultra marathons and other incredible challenges...

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